Dysautonomia Month

This is the real Zoe and Robyn. Quiett Mom POTS talk started with us just talking going off on tangents about POTS and Seahawks and colors....

We obviously are not pros here, just a mom and daughter passionate about helping and spread love and understanding for all the POTSies and everyone who is dealing with Dysautonomia. I hope this helps you feel seen and most of all I hope we make you feel loved and welcomed in our space.
~Robyn aka Quiett Mom

Transcript

Robyn: 0:01

Welcome in. And happy Monday or whatever day you're listening to this. This is Quiett mom, POTS talk. We today we have a little bit different approach. Today because we wanted to sort of. do something a little bit more. I guess we could say in formal so we're going to talk about this month. October is dysautonomia. Awareness month is. Did I say that right? Zoe. I hope so. I think so. So let's talk about what dysautonomia is. Word for. The group of. Disorders. I do it. Okay. You telling me what's dysautonomia, Zoe.

zoe: 0:47

Dysautonomia is. The umbrella group of disorders. Orders that Haas's a part of. Okay. It is a. The dysfunction of the autonomic nervous system or the ans. Ans which controls all of the involuntary parts. Of your body, all of the involuntary functions in your body. Okay. So pop. Is. Is, it stands for. Postural orthostatic. Caca cardio syndrome did. Party. Yeah. Syndrome. Okay. Say it. You say it the right way. Zoe postural or. Hispanic tachycardia syndrome. Okay. So that's what POTS. That's it. And if you haven't listened or if this is your first episode, With us. Zoe has POTS Let's stick with Dysautonomia how do you get dysautonomia? You can get dysautonomia from. A. Illness or injury. Like some sort of physical. Physical trauma. In my case, It would be. The concussion. Some people like end. With long COVID, which I think is a form of dysautonomia. I. I don't know that they've really classified that yet. But a lot of people with. With long COVID. Are treated the same way. People with POTS are treated. I was talking to a friend of mine the other day. And. And seen her since last year. She's actually one of the teachers that substitutes. It's for me a lot. And she was checking it on my family and they have everybody. He was doing. And she was, I was telling her about. You and that you had been, that we are doing a POTSS, a podcast now about POTSS. And she goes, oh, did she get that from having long COVID? So that's something. That's a. New or, and it's. The more publicized. That's a very common association. Yeah. So you got your POTS from your concussion. Concussions, which basically would be classified in the trauma category. The word trauma is used a lot these days. And. Sometimes trauma can mean. Things like a blow to the. The head or an actual injury, like a concussion. But oftentimes. We talk about trauma being the way we grew. Up or abuse as a child or things like that. So we're talking. About in this case, trauma means like a physical trauma. Yeah. Like concussions or a really bad injury or. Or a surgery or something like that. Do we know. Or do we. Or do you know if we know. We being the people who. Have titles for things. If. Th the trauma, if. Like a traumatic childhood or a traumatic event. Could cause. The same thing, like. Like a dysautonomia. To know me out here now. Aye. Okay. If you don't know. I would imagine, like, based on all of the research that has come out recently, Being that like mental health can have some of the same impacts that physical health can. I feel like it probably could, but. That's not necessarily saying that it would. My thing on. Okay. So I think Jesus. So I think. That. I know that for me. I have ADHD. And so I've done a lot of research and not a lot of research, but I've done. I guess. It is research, but it's when I think research, I think like big. Encyclopedias. Cause I grew up in the nineties. And books. Like flipping pages and diving deep into research and studies. And things like that when I say the word research, but my research has been like podcasts. And tick talk and. Some Google searches. But what. I've found and heard. There's a lot of people that are connecting trauma. And a traumatic childhood or a traumatic relationship. Or event like that. Is connected to. To some forms of ADHD. And actually there is a doctor. Out there. I won't, I don't know who it is, but I know that there is a doctor out there. Pretty public in saying that. He doesn't believe that ADHD. Is actually a mental health condition and there has been science to disprove that. Or not a. Mental health condition, but an actual medical condition. He is saying that it's trauma response. Which I know that that's. Not necessarily true. I don't think it's true anyways. But we've seen. I mean evidence in the medical world that that's not true. But we do also know that people can have ADHD or. At least symptoms of ADHD as a result of traumatic events in their life. So it wouldn't be too far. I feel out there. For us to maybe make that conclusion, but obviously science. And things like that have to prove or disprove right. So maybe now. It's different with ADHD than it is with POTS too, because. ADHD is very like neurological and. It's something going on with your brain when POTS is more like. It's your nervous systems. It is still neurological. But that affects. Like your whole body. And I don't, I. I don't know, brain science super well. Brain science, brain science. Cause what I'm. About to say is kind of brain science-based, but ADHD. He is a dis function or a disorder. I don't know what the right word is. Forgive me medical people, as I'm not a medical. Medical person. And this is a good place for us to like insert a little disclaimer. Claimer that we're not medical people. Yeah. I don't have degrees in medicine. And we are just people who are, have The research, some things, and we're talking about our life and the experiences that we have. So do not use our words to diagnose yourself or not diagnose or undyed. Undiagnosed yourself or whatever. We're just people talking about these. These things, but. ADHD is a dysfunction of your preferred. Prefrontal cortex. The autonomic nervous system is. The part of your brain. That kind of lives in the back of your brain, like near. Are your brainstem that affects, or that manages and controls. Trolls. Your involuntary functions of your body. That's. That's what tells you to breathe when you need to breathe without telling you to breathe and. Runs your heart and your digestion and all of those things. So it's important. To for it to. Function properly. Like one of the symptoms that you have had. That I've experienced with you. Where you've had. Heart rate symptoms. Sometimes your pulse is off. Sometimes your breathing is off. Sometimes your balance is off. So those are the things that really. We are the way that you're affected and that's the autonomic. Nervous system that creates those involuntary functions. In the body. Yeah. So what are some other condemn? Conditions that fall under the dis oughta. No Mia. Umbrella. Zoe. Zoe. And I decided to have this conversation as she was Googling things. When I was asking these questions, she's like, let's just have this conversation. I'm like, well, keep your phone close.'cause I probably going to think of some other questions. And I'm going to have you look things up. So she's looking it up right now. But this is actually, this conversation is one of. The reasons why we started to have, we thought this would be a fun podcast. Because we talk about these kinds of things all the time, and we sort of go into deep. Thought and talk about it. So do you have a list? Okay. Other dysautonomia first on the list is POTS. I just want to point that out. Probably one of the most. I think it is. Yeah. Another one is orthostatic. Hypotension, vasovagal syncope, familial. Dysautonomia here, autonomic failure. That sounds scary. Multiple system atrophy. Inappropriate sinus. Tachycardia. And there's more, but that's just kind of a. Short list. So if other, if we were like profession, responsible podcasters. Maybe we would've spent some time researching. Some of those things to know what they are. Right. But. We just started. Just started our podcast and we're just here to be the mom and daughter. Water and the support system for people who are dealing with some of these things. Not. The information. The information dispensers. Like, we'll tell you. About ads or whatever. So if you'd. Have any of those other conditions you might be familiar and there's probably a lot. Lot of overlap in some of this. That is a lot of overlap. And some of the treatments, some of the things that you said just from my. tiny medical background as a massage therapist, I guess. That's more than a tiny medical background, but I was a massage therapist for a while. So I know. Some of those words and I could probably break it down and figure out what it is from the. Medical terminology. But we just wanted to. Talk about dysautonomia awareness month and there's not. I wonder if there's a color, do you know. Is there. I think I. I think the dysautonomia color is green. Yeah. Cause like we have breast cancer awareness month. That is pink and. There are like different types of cancers have the different color. And. And if you watch the NFL, we're a huge NFL, just football family. And here in this household. So they're doing their crucial catch, which is. Dysautonomia awareness is turquoise. I loved. That's funny because that was always like my favorite color. Turquoise has always. Always favorite color. I'm up and lately there's like the turquoise. I don't know where this is going to go completely off the rails. And off-track. But the, when we here in Seattle started. Started the crack in a couple. A while back the Seahawks changed. Their colors to the dark Navy blue and then added the lime green. Green, which you can see behind us, if you were watching the video of. Portion of this. This is R was. I created this room for my son when he was born. And it's the Seahawks colors. And they added the lime green a few years ago. But. And then lime green has been here forever since you were born. Yes. Yes, but it has not been forever. You know, those throwback jerseys that they've been. You said it like, it was like, not that long ago. For a person that's my age. It was not that long ago. And people who have been. Seahawks fans from the start, which the Seahawks started in the mid seventies. I was born and the in 1979. So there's my age. But it was added in probably. Probably 2000. Four. Okay. If you are watching this and you're a podcast person, feel free to. Comment and correct me. I may or may not read the comment as Seahawks person. A podcast person. If you want to comment on this and send us a message, feel free to send us a message. I'm not exactly. Sure how to get those messages. But you can do that. And I. I will gladly field your questions. This is probably going to be the one that we get. The most comments on. But it was probably 2004 ish. Maybe not too much before that, because I know Shaun alexander. I want to say when Sean Alexander started, which I don't know when that was. But he married a high school. Classmate of my husband, who I thought you were gonna say, like he married. High schooler. He married no. He married a classmate. Classmate of dads. And I remember when they met. Met or like they came here and she met him. She was kind of like, there's. He wrote a book and he read, talks about it in his book. So I know this only through the book. But when he met Valerie. They were walking around. She took him to the. The field. And I think if I remember correctly, she took him to save. Cofield. Cause she didn't know where it was, but it was partly because they were. We're rebuilding the kingdom. They had, I don't know exactly. When all this happened and probably around 2000, 2000, I'm telling the story. That I don't even know. I haven't read the book. I was a big Sean Alexander fan when he was. Sean Alexander. Anyways, this is going off the track. Anyways. But what was my point? Oh. It changed around that same time when this, they blew up the. Kingdom. I moved the team to Husky stadium for a couple of years. Years while quest field was being built. And that was when. The T the colors were changed. So it was like in the early two thousands. It was like, It seems like. That hasn't been there forever. And it has been since you were born. Yeah, probably. For sure since Theron was well, no, I. I think it was like 2004 when they changed it because wasn't Marshawn. Drafted in like, oh four. And he was there for like a year or two. And they still had just the blue jerseys. Well, Do I see that? I don't know if only dad was here because. There were three color change. There's. Has been three color changes. God. There was the Royal blue. Jerseys. And gray. Oh, yeah, silver. Her pants. And then there was these colors. This is the light, like the Pacific blue. Blue, I think is this lighter blue, colors minus we are totally cutting. And then we'll have this out. We're not cutting this out. And then the dark blue. And then another phase to where we are right now. Now was they changed this blue to a gray, the lighter blue change to gray. And then they added the storm grade. And then probably, I don't know, a few. Years after that, that's when they added the neon green jerseys. So there've been quite a few color changes. The Seahawks have gone. Through a lot of identity. I had some identity crisises. It seems like. Now they've added back the NFL, the change. They added back. Throwback uniforms. We have though that. That's like post midlife crisis. You're getting yours. Stuff together again. You think that's. A good thing. Yes, but going back to go back. I could see that. But during that middle, if you want to say the color. Color change was a midlife crisis. There were some pretty awesome things that happened. We want. At a super bowl. We went to our first Superbowl with this color combination. Or they changed to the newer color combination. Yeah. And those were like the lighter. I have one of the lighter Navy blue jerseys, not quite as. The dark is what they are now. But But that, that. It was with Marshawn Lynch, the old jerseys, Marshawn Lynch also wore the new, new. New Jersey's Marshawn Lynch may have been drafted in the Royal blue. Jerseys though, like that may have been a thing. I don't think it wasn't. He was. He wasn't drafted. He was traded. We got him from Buffalo. After he had a leg. Injury. Oh, I forgot. He was in Buffalo. Yeah. And the first Superbowl we were wearing this color combo, the lighter blue, not. The great. The green, not the gray, the green. Was there, but it was only just the eye. It wasn't as big as it is now. But then the Seahawks. Hawks or not Seahawks, but then Seattle, like the Sounders came in and they kind of picked. Picked up on the green. But then the Krakken came in. This is where I was going with this. Started the Krakken came. Came in and they have this like that teal. The Krakken teal color. I love that color. It's a turquoise. Turquoise. T, well, the Mariners have the teal. The Krakken has an eye. It's almost like a Tiffany blue color. I don't know if that's trademarked. That title, but that's the color that it is. It's like one of my favorite. In my top three of colors right now that Krakken. It has been for a while or whatever. Yeah. So anyways. That is it that color? Teal. That's the dysautonomia color. That's where. Full circle moment. Well, the joke is like 10 minutes. Can you. Like tell. Tell me you have 80. I have add without I am telling you, I have add without telling. Telling you, I have add, although I already said it twice today, but. I think so. I've seen it before. But. But I've also seen like, you know, like the ribbon things, cause it is a ribbon is. That's whatever, and they are a lot of the colors overlap. Though, too. Yeah. Yeah, but like I've seen the ribbon things that have like, It. Fades into a lighter or darker colors. So I really don't know. Okay. Well, maybe try to find it. I don't know if I'm savvy enough. To figure out how to put it in our show notes or in our like Transco. Script. But maybe one of these days I'll learn how to do. I do this stuff like a professional. Podcast. The person we're. We're not a professional podcast or people. But so that's. The color of the dysautonomia. If we figure it out, we should make like a little, a teal. Picture or. Post it on. Yeah, we'll post them on Instagram. Or tic talk or do we don't think we have a tick talk? I think we just have Instagram. Do we have a Facebook? No, just Instagram. Okay, so, so yeah, questions, how, okay. So we talked about how you get it. What other conditions we talked about? What other conditions. We've talked about autonomic nervous system. I don't have anything else on my. Notes about that. So Oh, be a really short. At one for today. Talk about that. I. If you. Like this is, this is us. Us. This is. Zoe and Zoe's mom, Quiett mom. talk quiet mom, POTS talk. Thanks for listening. If you. Like this you might want to, and you want to get a little bit more information about. POTS and where we came from. And Zoe is trademarked. Sit breaks. There are a few other episodes for you to find. And. We would love for you to explore that? Yes. Yes. I keep saying I'm in this episode, I feel like when we started out with. Not saying Just one more thing to like close it. All up. Dysautonomia is very difficult and it. Affects, basically everything because it affects things that you don't even think. Happen in your body. And. Being. Being somebody that deals with dysautonomia. It's very good to have people. People that support you and people who are understanding. And who are not. Critical. My best advice for anyone who knows somebody. Who has somebody in their life with dysautonomia is to just be. Sensitive to them. Be comforting, be supportive. Fortive and be understanding don't criticize. Assize them for feeling bad or for missing out on something. And B. Give them grace because it's important. Important. If you are a person who has a dysautonomia. It's important for you to listen to your body. It's important for you to take care of yourself because if your body can't function. Well, in things like pumping your blood or breathing. It's a big deal and it. Makes you tired and it makes you cranky and it makes it so that you have a hard. Hard time functioning and you do have to, there are times in life that you have to. Tough it out and just do it. So if it's not something in your. Our world that you have to tough it out and just do it might be a good time for you to take a rest. So if you are a friends, With that person comfort them for missing out. Don't make them. I feel bad and just love on each other. And remember if you are that person. But it's okay to not be okay. And. That's a really like it's a mental health term and we just pass mental health. Awareness day on the 10th or 11th of October. But But we want you to know that it's okay to not be okay. And it's okay to listen to yourself. When you're not. Okay. Final last words. I said my final, last words. Thank you. And. Share this, if you want to. If you want to share our. Craziness. This is the real view. Have. If you're a mom and you have. The daughter and your crazy, like this, share that with them. If you're a daughter. And you have a mom and you're crazy like this, share this with them. And if you don't have a mom, a crazy mom, you can adopt me. I will be. Everybody's question. Is everybody's crazy. Crazy Quiett mom. All right. Thank you guys. Have a good night and we will see you next time.