Quiett Mom POTS Talk
Robyn and Zoe, Mom and Daughter, talk about dealing with Chronic Illness as they navigate a POTS diagnosis. Everyone needs someone to confide in, relate with and get support from. Zoe and Robyn want to inspire Mothers and Daughters alike to live their best life in the most fulfilling way possible, but also realize what it means to be okay, and to not be okay especially when navigating chronic illness.
Quiett Mom POTS Talk
Quiett Introduction
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Robyn and Zoe, mom and daughter, have mom talk about dealing with chronic illness as they navigate a POTS diagnosis. We believe everyone needs someone to confide in, relate with, and get support from. Want to always Inspire mothers and daughters alike to live their best life in the most fulfilling way possible. But they also realize what it means to be okay with not being okay. Especially when navigating a chronic illness. Hello, I'm Robyn. I'm Zoe. Hello, I'm Robyn. Okay, let's go. Hello, I'm Robyn. I'm Zoe. And this is the Quiett Mom Pots Talk podcast. in today's episode. We are going to go over what is POTS, who we are, why we are here, and what you can expect from us through journey of our first ever podcast. Zoe is going to start telling us about what POTS is. If you're confused and you don't know what it is, if you're here, you probably know what it is. But POTS is It stands for postural orthostatic tachycardia syndrome, which is an autonomic nervous system disorder or dysautonomia. It affects things that your body does without you having to think about it, which is your autonomic nervous system. So breathing, your heart rate, Your, digestive system, your temperature regulation, your circulation, basically anything that your body is doing non stop when you're not thinking of it, when you're not telling your body to move your arm. POTS is a chronic illness under the dysautonomia umbrella. Let's tell everybody who we are. Yeah, you are. I'm Robyn. I am the mom in the Quiett mom pots talk equation. I have a little minor history in the medical field as a massage therapist. I went to massage school right out of high school. I also married my high school sweetheart and I'm a I had two lovely children. One of them is Zoe. She was my first. And then my second was a little less than two years later. I had two children under two for a little bit of time and it was a little bit of a handful. I was a stay at home mom and Zoe was a colicky baby. And I feel like our journey to get to where we are today for me being the supporter and the helper and her journey through POTS has been, I started back then when she was a baby going, something is wrong, we have to help, you have to help me help my child and I knew that there was something and we just struggled finding me. a diagnosis. I don't know. And I doubt that it was pots back then. It's probably just a mom that didn't know what the heck was going on because that's what we do when we're the first time moms. But I do remember saying the same things that I've heard her say recently. Like I just want an answer. I just want to know what's happening. And I just want to know how to fix what's happening to me and not just. Cover the symptoms or tell me it's in my head. And I had that when she was a baby, but as I navigated my kids through school, I was a stay at home mom for a while. And then I went back to work as a massage therapist. I did a little bit of a part time work doing massage. I also did a lot of side hustles to get me through mentally. And to help out a little bit financially with our family, We've had a very traditional stay at home mom situation where I was a volunteer at school. I was always there. I remember having backseat talks with Zoe and her friends about things that they were learning in school that I had no problem talking about. We won't go into those details. for having us. Anyways, as they've gotten older, I decided to go back to school and become a teacher and I work at an alternative high school now. And one of the reasons why we're here, which we'll get into a little bit more, but I just want to, I've always had this passion for inspiring and helping my kids, but then Also helping women and people who struggle to have a voice for themselves and help people to learn how to self advocate. So that's one of the reasons why I'm here. And that's one of the reasons why we decided to do the Quiett mom, the mom, part of the mom talks. So Zoe does mom is because you're my mom and it's because I'm her mom and not everybody has a mom that will talk to them about the things that I talked to. Yeah, that's very true. I am Zoe's mom, but now I'm the volunteer mom on my own in the Quiett Mom Pots podcast. You're going to have a hard time with that one. Okay. That is a little bit about me. I think that's enough about me. Let's talk about the star of the show which is Zoe. Zoe is the one who really brought us here and she's done the research. She's done a lot of the stuff that is going to be the meat of the things that you're going to learn about POTS. I'm just the inspirational and cheerleader hype squad side of it. I am Zoe, obviously I'm 20 years old and I have POTS. I work as a receptionist at a chiropractor's office and I'm about to start teaching at a dance studio for kids. I danced since I was a year and a half through junior year in high school. And I competed seven of the almost 16 years that I danced. And I was always super flexible and hyper mobile throughout basically my whole childhood. In middle school, I had a lot of knee problems. They never really figured out what was wrong with it, went through a couple different diagnoses and nothing ever really stuck. I still have issues with my knees today, sometimes even up into my hips and down my ankles. In fifth grade, I got my first concussion. I have had seven concussions, and the first one really was the worst. I fractured a piece of my skull and got fluid in my brain. Since then, I was just really susceptible to concussions. The second one was pretty significant, but every one after that was something very minor that just caused me to have a concussion because I was so Now, after being diagnosed with POTS in December, I have started to manage all of my symptoms and continue to live life normally as much as possible while still catering to my needs and making sure I take the time for myself to take care of what I need to. And that brings us to here. One of the things that Zoe was told, not to speak for you, but was to do some research and see what she found online and what resonated with her. One of the reasons we are here is because it's been hard for us, for Zoe specifically, but it's hard to find information and help about what POTS is. There's a lot of things. Out there, but it's also, there's a lot of, not vetted real information. That's all bad. That's all bad. That's not may or may not be accurate before we go too much further. We should probably put our disclaimer in here, which is we are not medical professionals. We are not. Experts by any means, please do not take what we are saying for medical advice as we are not doctors. And we are here to just give you an insight of what we're dealing with and what Zoe's dealing with and what she's learned, but get your. Treatment and all of your medical advice from your medical professional, we're just here to give support. What's your goal for why we are getting there? Let me figure it out. Okay. Figure out how to say it. Geez. After I was diagnosed with POTS, I was told by my doctor to do as much research as I could and figure out what I related with and what I experienced. What I found was a lot of different symptoms that I related with, things that I dealt with every day that I thought were normal, but really were because of POTS. And along with that, I eventually went to physical therapy, and my physical therapist, Recommended a website for me, and when I found that website, it had a ton of different Dysautonomia professionals and specialists on there, and there was only one in my area. And when I say in my area, I mean in a 500 mile radius of my area. That was really discouraging to see, to know that there's not even that many doctors that know about it, or that treat it, or that can help with it. Luckily for me, I've been seeing a neurologist since my first concussion back in fifth grade. So I had an insight on that end, and I had also been seeing a cardiologist for all of these symptoms I had been dealing with. They were able to help me and point me in the right directions, and now I'm finally getting into a specialist. Hopefully soon, but I wanted to be able to help other people understand what POTS is and what you can deal with and what things can help that don't require going to a doctor's appointment. Yes, I'm not trying to give you the medical advice and tell you what a doctor would say, but, I am experiencing POTS for myself, and it's probably not the same as anybody else, but what I have done might be able to help other people find things that could help them. So a lot of chronic illness in general is similar to POTS in that everybody's presented with it in a different way. So Zoe has some ideas. Some things, if you have POTS, use it. I honestly think some of the things that we're going to teach you about, especially The first thing that we're going to talk about next week, you can use in your own world, even if you don't have pots. so that's what we're here for. We're going to be here. What you can expect from us is we're going to be here about once a week. We are probably going to try to get all of our episodes out on Mondays. And you can expect to get about one a week from us and, we will be here to you. Navigate through this. We want to be your hype squad. We want to be somebody you can relate to. There will, we will have an option for you guys to be able to send emails, ask us questions. And maybe we'll have some experts in, we don't really know right now. Not real experts, just like special guests. Right now we just are starting with the two of us because we think that we're pretty interesting and we, and that you want to listen to us. We think we're so cool. We think that we're interesting and it would be fun to sit and talk in our room for a while. That's why we're here. We're here to give you mom advice. That's where I come in. Thanks mom. And we're here to be your hype squad and encourage you to be you and to like, sometimes everybody has bad days. Sometimes people with POTS think and feel like they're having more bad days than the average person, which is probably true. But everybody's bad days are a little different. And when you deal with POTS, it's more things about your body and It's hard to have to deal with it, but we're going to teach you some strategies and also give you the grace to just accept yourself the way that you are. Some days you just don't have it in you to do what you have to do, and that's okay. Sometimes it's not your best, but. You just have to accept yourself, give yourself grace, love yourself. And we're here to encourage you to do that. Anything else before we head to the next episode? We're the perfect sit break podcast, the perfect sit break podcast. Next week, our second episode will be all real episode. It will be all on sit breaks. We're going to have a little bit better. It'll be a little bit more structured. And we're going to talk about sit breaks and why they're so important. Less boring, annoying, who we Annoying? Less boring us talking about ourselves. Yeah. Less boring introductions, more actual pot stuff. And we'll give you some strategies for your life. And honestly next week isn't really pot stuff. It's just Take a break stuff. And Zoe, did you, where did you, create the sit break scenario? So Zoe created this sit break scenario. This is a good place to plug. Zoe has an Instagram page called P.O.T.S. Talk that you can find on Instagram and Tik TOK. Is that? Are you anywhere else or just those two places? Just Instagram and TikTok. So on Instagram and TikTok, you can find Zoe at Pots Talk and that's like the acronym, right? Yeah. Periods P, period O. I don't remember. Whatever. We'll put a link in the show notes to Zoe's Instagram. And we will have, more information about a sit break next week. And we think that sit breaks are, we are like on a sit break revolution because we think that it's because we think that a set break could really change the world. So thank you for being here today. Thanks for listening to us. We will talk to you next Monday or whatever day that you're listening to this. You will be able to find us anywhere that you find your podcasts. Also, if you liked this episode, it would be super helpful for us if you could click the share button and Send them, just share this with somebody who you think could benefit from this. Thank you for listening. We will see you next Monday and you can catch us on anywhere you find your podcasts. We will see you for sit breaks and we just want to say that everybody needs a little Quiett time.